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full time adult end of life care

Posted: Thu May 13, 2021 10:18am
9 replies165 views4 members subscribed
oldpete

Posts: 5

Location: Antequera

Joined: 13 May 2021

Due to family constraints, I cannot be too definitive in this question. We have a family member who has stage 4 cancer. No real prognosis, except he has maybe 3-4 months left. He is living alone at home. Family are trying to fly out from UK in weekly batches to look after him, but needless to say there are two who are taking the brunt and others who due to financial/work/school committments cannot get out more than once every 3 or 4 months. As is normal in most families. Horrible situation as the patient needs 24hour nursing rather than family being at his bedside.

My question is, does anyone know if there are any organisations in the area that will provide the nursing care at home, and at what cost?  Will the SNS be able to provide palliative care for expats at home or in hodpital? He has residentia, I am unsure as yet of his medical insurance, so hopefully they might. Or is it best to look for hospice type care, if that exists in the town.

I really dont know the best questions to ask, but hopefully someone out there will be able to at least guide me to the right place to ask.


Sal44

Posted: Fri May 14, 2021 1:07pm

Posts: 1

Location: Torre del Mar

Joined: 12 Jan 2021

Posted: Fri May 14, 2021 1:07pm

Cudeca (a Spanish cancer charity who also have hospices) are a really good starting point. Good luck at this awful time.

oldpete

Posted: Sat May 15, 2021 12:38pm

oldpete

Original Poster

Posts: 5

Location: Antequera

Joined: 13 May 2021

Posted: Sat May 15, 2021 12:38pm

Sal44 wrote on Fri May 14, 2021 1:07pm:

Cudeca (a Spanish cancer charity who also have hospices) are a really good starting point. Good luck at this awful time.

Thank you for your time and suggestion

Samlouisa

Posted: Wed May 19, 2021 8:32pm

Posts: 44

18 helpful points

Location: Torrox

Joined: 24 Oct 2019

Posted: Wed May 19, 2021 8:32pm

oldpete wrote on Sat May 15, 2021 12:38pm:

Thank you for your time and suggestion

Though your friend has Spanish residency, if they are still getting UK pension, then your friend might be entitled to DWP payments. The patient or someone on their behalf will need to call the DWP and apply for PIP under special care when a person has a terminal illness. You will need to tell them that your friend is a UK citizen with terminal illness. I know that sounds blunt but if they are told straight away then your friend jumps to the front of que and do not have to wait weeks for finance. Instead it will be a 3 week wait to know of what payments will pay for home or hospice care. You also need to download a DS1500 form and get your friend's doctor, G.P, medical centre or hospital doctor to fill the form in. I hope this helps and your able to access the PIP terminal illness finance to provide your friend with the best care in the world, DWP PIP number is a UK call to 08009172222. God Bless, x 

oldpete

Posted: Thu May 20, 2021 12:46pm

oldpete

Original Poster

Posts: 5

Location: Antequera

Joined: 13 May 2021

Posted: Thu May 20, 2021 12:46pm

Samlouisa wrote on Wed May 19, 2021 8:32pm:

Though your friend has Spanish residency, if they are still getting UK pension, then your friend might be entitled to DWP payments. The patient or someone on their behalf will need to call the DWP and apply for PIP under special care when a person has a terminal illness. You will need to tell the...

...m that your friend is a UK citizen with terminal illness. I know that sounds blunt but if they are told straight away then your friend jumps to the front of que and do not have to wait weeks for finance. Instead it will be a 3 week wait to know of what payments will pay for home or hospice care. You also need to download a DS1500 form and get your friend's doctor, G.P, medical centre or hospital doctor to fill the form in. I hope this helps and your able to access the PIP terminal illness finance to provide your friend with the best care in the world, DWP PIP number is a UK call to 08009172222. God Bless, x 

Thank you. I was totally unaware of all this. Thank you for this and I will chase it up.

P

Samlouisa

Posted: Thu May 20, 2021 1:12pm

Posts: 44

18 helpful points

Location: Torrox

Joined: 24 Oct 2019

Posted: Thu May 20, 2021 1:12pm

oldpete wrote on Thu May 20, 2021 12:46pm:

Thank you. I was totally unaware of all this. Thank you for this and I will chase it up.

P

Chasing it up can be very stressful to start a claim and millions of questions but once it is done , then the DWP system will support you and your friend and ask no more questions, The palliative care can be for 6 months initially but will extend the care package and payments to 3 years. Bet your friend is so happy to have you as a friend (◍•ᴗ•◍)❤

Rfc1872

Posted: Thu May 20, 2021 10:26pm

Posts: 9

5 helpful points

Location: Casares

Joined: 29 Jan 2021

Posted: Thu May 20, 2021 10:26pm

Although I can't help with your question I hope things work out as best as they can for him.The family is in a very difficult situation but I hope the good advice on here makes things a tad more bearable,if that is at all possible.

My sincere wishes for a solution that makes his final months pass by with comfort and good care. Your family have pulled together in a difficult situation.

God bless   💙💙💙

oldpete

Posted: Fri May 21, 2021 11:54am

oldpete

Original Poster

Posts: 5

Location: Antequera

Joined: 13 May 2021

Posted: Fri May 21, 2021 11:54am

Rfc1872 wrote on Thu May 20, 2021 10:26pm:

Although I can't help with your question I hope things work out as best as they can for him.The family is in a very difficult situation but I hope the good advice on here makes things a tad more bearable,if that is at all possible.

My sincere wishes for a solution that makes his final months pass by with comfort and good care. Your family have pulled together in a difficult situation....

...

God bless   💙💙💙

Thank you all for your help and kind words.

P

oldpete

Posted: Sun May 23, 2021 12:50pm

oldpete

Original Poster

Posts: 5

Location: Antequera

Joined: 13 May 2021

Posted: Sun May 23, 2021 12:50pm

Thank you all for your support. My son is out there now and will be following up all suggestions. His father in law is now bedbound, unable to move his left arm or leg, so any help coming from your care and suggestions is very welcome. Just flying out there will cost them around £1000 in covid tests, you would think that having to show hospital and GP records before flying, the cost would have been paid by the NHS. But sad time all round.

Samlouisa

Posted: Sun May 23, 2021 2:26pm

Posts: 44

18 helpful points

Location: Torrox

Joined: 24 Oct 2019

Posted: Sun May 23, 2021 2:26pm

oldpete wrote on Sun May 23, 2021 12:50pm:

Thank you all for your support. My son is out there now and will be following up all suggestions. His father in law is now bedbound, unable to move his left arm or leg, so any help coming from your care and suggestions is very welcome. Just flying out there will cost them around £1000 in covid t...

...ests, you would think that having to show hospital and GP records before flying, the cost would have been paid by the NHS. But sad time all round.

Glad to hear you are getting support. I heard on the news that Spain government has said there is no longer any need for PCR test. I know the Spain's prime minister said this on BBC news but on ground level I do not know if this is now put in place or that PCR test still needed.

God Bless 🙏 your friendship

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